samedi 13 août 2016

Why this blog



I had a lot of health bad luck.

I was born with kidneys malformation and began my life with left kidney surgery : ureteral reimplantation, megaureter, hydronephrosis.

Before the age of 21 i was fine. But when my mom had cancer, stress gave me constipation, which gave me a sort of inguinal hernia. A small lump, diagnosed sometimes as direct or indirect hernia, but too small to remove.

Few days/week later a painful small cyst(6mm) appeared on my right epididymis. When doctors told me cyst were not painful, and that my bowel had nothing to do with that i began to understand that modern medicine is flawed.

My impression sustained when my mother died from cancer, left in her hospital room without water. Yes that's what they do to make people die faster when the end is near.

Meanwhile i developed varicocele, really hellish discomfort. But as i was still hopeful i had surgery to fix that so called "benign condition".

I suffered years and years from varicocele, and recurrent epididymitis (cipro each years).

I also had appendicitis / peritonitis the year after varicocelectomy.

2012, i felt and had a trauma on my left kidney.

In 2014 i developed strong inguinal pain, and increased epididymitis crisis.

After a lot a medical appointments, where i was told i had to leave with that. I trusted a new GP who advised me to have laparoscopic exploration, to see what happened to my bowel down there, and to remove adhesions from previous surgery. Again it was a benign surgery, with a camera too see what happens down there.

BAD IDEA again. It only increased my inguinal pain, as the surgeon cut a nerve : the genital ramus of the genitofemoral nerve. No luck for me, as it relieve some people with testicular pain, it didn't alter my sensation down there but abolished my cremasteric reflex, so now my right ball is hanging low which is very uncomfortable because of pain and mild varicocele, and heaviness from feeling something hanging. Still hope the nerve to repair but chances are slim.

I'm left in depression panic attacks, lot of regrets not having anticipated the probability of genitofemoral nerve damage.

When you are sick you need to become the doctor. I'm sorry for them but most of them are so arrogant that they don't think they still need to learn. The surgeon, which had a good reputation told me he didn't touch anything down there. I guess after 30 years of surgery he still doesn't know what he is doing.

Never have adhesiolysis. This is stupid as pain from adhesion is most often entraped nerves in these adhesions. But if the surgeon is not skilled - thing you can't really know before surgery - he will cut the adhesions along with the nerves. A good surgeon will identify nerves and maybe just free the nerve from adhesions, but again you can't know ! And if this is a mess in there he will cut cut cut and oups mistake.... So don't have adhesiolysis : very bad idea. I've read tons of testimonials of women doing adhesiolysis after adhesiolysis without relief of pain : because the surgeons aren't really aware of nerve related pain, neuroma. And remember when there is pain there is nerve. If it is a nerve ending, it is ok as long as it doesn't produce a painful neuroma. But if it is a important nerve you're done.... FYI the genital branch of the genitofemoral branch is 2mm large. But the pain for this nerve can be 10/10. So be careful. Try every other non surgical way before surgery !!! Acupuncture, yoga, phytotherapy, TCM, massage (lots).... Have an appointment with a neurologist, he will send you to the good surgeon if you really need it. Don't be stubborn like me. Sometimes your pain can be worse. I didn't accept my levels of pain, now they are worse plus anxiety.


I have read a LOT of medical papers, so much i could go in a medical school..

I will write articles about male problems as i've gone through a lot and could help people not doing mistakes, as risky surgeries.... If you need my opinion, even if you should ** disclaimer ** trust you GP and not a guy on the internet, don't hesitate to contact me. I'll feel less alone with that shit.

If a blog like that existed years ago my life would definitely be better. I was stubborn, and really hurted myself. Please don't be stupid.

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